Support from disability and health organisations

Information and advice regarding other disabilities and health conditions that can occur in conjunction with epilepsy is available through several support organisations. These include:

Autism Spectrum Disorder (ASD)

There are various regions where Autism New Zealand can provide information, advice and support for people living with autism spectrum disorder and those who care for them.

Brain Injury

Brain Injury New Zealand  provides information and referrals in support of all Australians living with brain injury.

Parent 2 Parent is an organisation that fosters peer support networks to help people with acquired brain injury and their families.

Cerebral Palsy

Cerebral Palsy society  works with people with cerebral palsy and people with similar disabilities and their carers. 

Down Syndrome

New Zealand Down Syndrome Association  is the national voice for people with Down syndrome and their families.

Fragile X Syndrome

Fragile X New Zealand serves its members and aims to improve the wellbeing of New Zealanders affected by Fragile X disorders through providing support to them and their families.

Pallister-Killian Syndrome

Pallister-Killian Syndrome Foundation of Australia has been established to provide help and support to individuals diagnosed with PKS and their families as well as raising awareness and providing information to the medical community.

Prada-Willi Syndrome

Prader-Willi Syndrome Australia is a self-help group comprising people born with Prader-Willi Syndrome, parents, friends and interested professionals.

Rett Syndrome

Rett New Zealand seeks to improve the quality of life for persons with the syndrome and their families, and be of assistance to anyone interested in the disorder.

Tuberous Sclerosis Complex


Tuberous Sclerosis Complex New Zealand  empowers people affected by this condition through access to the best treatment options, up to date information and support.

More information about epilepsy-related syndromes and links to some  international support organisations is available here.


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