Covid 19 and Epilepsy Update 26 March 2020

Thursday, 26 March 2020

Epilepsy New Zealand has been receiving regular information from the Ministry of Health and other agencies, often more than once a day, showing just how quickly the situation is evolving. No doubt there will be many people, including those with epilepsy, who have questions around their risk and what to do in these uncertain times. Hopefully the information below may help reassure you and where necessary, prompt you to contact your trusted health professional.

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BPAC issues new guidelines for Lamotrigine

Thursday, 26 September 2019

BPAC issues new guidelines for Lamotrigine.

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Petition against Pharmac's drug changes

Thursday, 29 August 2019

A petition is underway calling on Pharmac to reverse its decision on Lamotrigine.

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Epilepsy NZ Position Statement - Lamotrigine

Wednesday, 28 August 2019

We opposed this change from Lamictal to Logem from the start, and staff have advocated on behalf of people with epilepsy in discussions with Pharmac.

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Ministry of Health survey improves understanding of epilepsy

Tuesday, 26 March 2019

The Ministry of Health recognises the challenges that people living with epilepsy face and is working to understand the condition better. To help raise awareness of epilepsy and mark Epilepsy New Zealand’s ‘Purple Day’ campaign, the Ministry of Health is releasing the findings of its first Epilepsy Consumer Experience Survey today.

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Crip the Lit launches "little book with big ideas"

Wednesday, 13 March 2019

Robyn Hunt advises us that one of the right writers featured within this book writes frankly about her epilepsy in a very positive and empowered way.

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Epilepsy New Zealand partners with innovative Dunedin Company

Thursday, 31 January 2019

Epilepsy New Zealand partners with innovative Dunedin Company Innovative Dunedin Company First Aid Pod, whose pop-up shelters offer privacy during medical emergencies, is linking with Epilepsy New Zealand. First Aid Pods have been selling fast in New Zealand and Australia since being launched in April 2017 by Dunedin based businessmen Tony Watts, Craig Latimer and Braedan Trompetter.

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Mikayla's Journey

Thursday, 29 November 2018

The story is about our daughter Mikayla who suffers with nocturnal frontal lobe epilepsy.

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SIR BILL ENGLISH APPOINTED AS PATRON OF EPILEPSY NEW ZEALAND

Thursday, 29 November 2018

Epilepsy New Zealand is proud to announce that Sir Bill English has graciously agreed to become patron of the national organisation. Chair of Epilepsy New Zealand, Dr Peter Bergin says: “We are grateful to welcome Sir Bill English as our patron. To have such a skilled person supporting our cause - which is to improve the quality of life of people and their families living with epilepsy - is invaluable.”

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Taking medicines for epilepsy, mood, or pain ACC Link

Monday, 5 March 2018

Foetal Anticonvulsant Syndrome ACC has worked with experts from across the sector to let women, their families and their health providers know about the effects of taking antiepileptic medicine during pregnancy. This includes: The use - for epilepsy, mood disorders, and pain management The risk of harm - malformations and cognitive impairments What to do if they're pregnant or planning a pregnancy.

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Don't Give Up by Adele Hauwai

Monday, 4 December 2017

Adele Hauwai has shared her Living With Epilepsy story as part of the Epilepsy NZ Tell Us About It Competition. People were asked to send in their stories about epilepsy, the challenges they faced and the lessons they have learned that they would like to share with the world.

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New ILAE Seizure Classification

Friday, 10 March 2017

The ILAE announces the publication in Epilepsia of two new landmark classification documents, one of seizure types and one of the epilepsies.

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Media Kit

Thursday, 2 February 2017

Media Information Kit

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View Archived Items

Latest Updates

  • Covid 19 and Epilepsy Update 26 March 2020
    26 March 2020

    Epilepsy New Zealand has been receiving regular information from the Ministry of Health and other agencies, often more than once a day, showing just how quickly the situation is evolving. No doubt there will be many people, including those with epilepsy, who have questions around their risk and what to do in these uncertain times. Hopefully the information below may help reassure you and where necessary, prompt you to contact your trusted health professional.

  • BPAC issues new guidelines for Lamotrigine
    26 September 2019

    BPAC issues new guidelines for Lamotrigine.

  • Petition against Pharmac's drug changes
    29 August 2019

    A petition is underway calling on Pharmac to reverse its decision on Lamotrigine.

  • Epilepsy NZ Position Statement - Lamotrigine
    28 August 2019

    We opposed this change from Lamictal to Logem from the start, and staff have advocated on behalf of people with epilepsy in discussions with Pharmac.

  • Don't Give Up by Adele Hauwai
    4 December 2017

    Adele Hauwai has shared her Living With Epilepsy story as part of the Epilepsy NZ Tell Us About It Competition. People were asked to send in their stories about epilepsy, the challenges they faced and the lessons they have learned that they would like to share with the world.

  • New ILAE Seizure Classification
    10 March 2017

    The ILAE announces the publication in Epilepsia of two new landmark classification documents, one of seizure types and one of the epilepsies.

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