PRIVACY & SECURITY STATEMENT
Epilepsy NZ is committed to protecting the privacy and dignity of all clients and website users. We collect only the information necessary to provide safe and effective epilepsy support, in line with the Privacy Act 2020 and Health Information Privacy Code 2020. Personal information is stored securely, accessed only by authorised staff, and shared only with consent or when legally required.
Client Privacy When Interacting With Our Services
When you access our services (including education sessions, advocacy, referrals, or support), we may collect personal and health information that is necessary to:
– Provide safe and appropriate epilepsy support
– Coordinate care and referrals (where consent is provided)
– Maintain accurate records for continuity of care
– Meet legal and professional obligations
We collect only information that is relevant and necessary for the purpose for which it is obtained.
ENZ educators will document client interactions in a factual, concise, and respectful manner, recording only information necessary for the delivery, continuity, and safety of epilepsy support services. All notes must comply with the Privacy Act 2020, the Health Information Privacy Code 2020, and relevant health and social service professional standards. The brochures below explain your privacy rights and how ENZ will manage your personal information.
Accessing and Correcting Your Information
You have the right to:
– Request access to the personal or health information we hold about you
– Request correction of any information you believe is inaccurate
To make a request, please contact:
national@epilepsy.org.nz
Website and Online Privacy
Epilepsy Association of New Zealand Inc is also committed to protecting your privacy when you visit our website and engage with us online. Any information collected is used to improve your experience and support our services.
Information We Collect
We collect two types of information:
1. Web Traffic Information
This is aggregated statistical information used to understand:
– The number of visitors to our website
– Pages most frequently viewed
– Time spent on the site
– General traffic sources
This information does not identify individual users.
2. Personal Information
We collect personal information only when you voluntarily provide it.
This may occur when:
You sign up as a Member
We collect your contact details and store them securely in our database.
You register for an event
If an event is delivered regionally, your registration details may be shared with the relevant Epilepsy organisation selected by you for participation. Information collected may include your name, email address, and phone number.
You make an online donation
We may collect your full name, address, email address, and phone number to issue a receipt (including for tax purposes) and to communicate with you about our work.
We do not store credit card or banking details.
You complete a referral form
Information submitted through a referral form is shared only with the Epilepsy organisation selected. If submitting information about another person, you must have their consent or legal authority.
Social Media
ENZ maintains social media accounts to share information, raise awareness, promote events, and engage with our community.
If you interact with us on social media (for example by commenting, messaging, tagging, or sharing content):
– Any information you provide is subject to the privacy policies of the relevant social media platform.
– Information you post publicly may be visible to others.
– We may respond to comments or messages but will not discuss personal or health information publicly.
If you contact us via direct message and share personal information, we may move the conversation to a secure channel (such as email or phone) to protect your privacy.
We will not collect personal information from your social media profile beyond what you choose to share with us.
Security of Information
ENZ and our website service providers use appropriate technical and organisational security measures to protect personal information from:
– Loss
– Unauthorised access
– Misuse
– Alteration
– Disclosure
While we take reasonable steps to protect your information, there is always a residual risk when transmitting data electronically.
Mailing List
If you no longer wish to receive communications from us, or would like your details corrected or updated, you may:
– Use the unsubscribe link included in our communications, or
– Contact us at national@epilepsy.org.nz
Updating Your Information
If your personal information changes, please notify us promptly by contacting:
national@epilepsy.org.nz
We will update our records accordingly.