Publications from the Australian Epilepsy Longitudinal Survey
To date, there have been three formal research surveys – Wave 2 (2010), Wave 3 (2013) and Wave 4 (2017). Download an overview here.
The Wave 2 survey looked at the needs, perceptions and experiences of people living with epilepsy in Australia.
The Wave 3 survey looked at the social impact of epilepsy.
The Wave 4 survey explored the access to services and supports that improve quality of life for people with epilepsy and their families.
With each Wave we conduct, we will build an evidence base of the impact of living with epilepsy. The results of our research will help us to provide better services at Epilepsy New Zealand and assist in lobbying government for improved outcomes for Australians living with epilepsy.
Articles
Coleman H, Peterson CL & Walker C. (2020). Examining quality of life in an Australian cohort of people with epilepsy over six years – Understanding the role of stigma and mood. Epilepsy & Behavior, 113, 107473.
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Peterson CL, Coleman H, & Walker C. (2020). Needs for aids and equipment for the management of epilepsy in an Australian cohort. Epilepsy & Behavior, 108, 107062.
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Peterson C, Walker C, Coleman H, Shears, G 2019 Reported service needs at diagnosis of epilepsy and implications for quality of life. Epilepsy and Behaviour, 100, Part A, 106527
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Peterson C, Walker C, Coleman H 2019 “I hate wasting hospital’s time”: Experiences of emergency department admissions of Australian people with epilepsy. Epilepsy and Behavior, 90, 228-232
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Walker C and Peterson CL 2018 A Sociological approach to resilience in health. International Journal of Evaluation in Clinical Practice: 24: 1285-1290
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Peterson C and Walker C 2018 Are Medicare and Pharmaceutical Benefit Scheme Services Too Costly for Patients? An Epilepsy Based Study. The Australian Journal of Social Issues 53: 386-399.
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Walker C 2018 Commentary on Martin’s What matters in multimorbidity: arguably resilience and personal health experience are central to quality of life and optimizing survival. Journal of Evaluation in Clinical Practice : 24; 1291-1292
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Walker C and Peterson CL 2017 Does being well off help people with epilepsy cope better? The social impact of epilepsy. International Journal of Epilepsy 4: 19-25
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Walker C and Peterson C L 2017 Multimorbidity: a sociological perspective of systems. Journal of Evaluation in Clinical Practice 23: 209-212
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Walker C 2015 First steps to systemic change to meet the needs of people with serious long-term illnesses. Patient Experience Journal 2 (2) article 10.
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Bellon M, Crocker R, Farnden J, Gardner J, Sando S & Peterson C 2015 Family Support Needs Following Acquired Brain Injury Across Metropolitan and Regional/Remote South Australia’ Brain Impairment 16(2), 133-44, DOI.
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Peterson C L, Walker C, Shears G 2014 The social context of anxiety and depression: exploring the role of anxiety and depression in the lives of Australian adults with epilepsy. Epilepsy and Behavior 34: 29-33
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Bellon M, Walker C, Peterson C, Cookson P 2013 The “E” word: Epilepsy and perceptions of unfair treatment from the 2010 Australian Epilepsy Longitudinal Survey. Epilepsy and Behavior 27: 251-256
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Bellon M, Walker C, Peterson C (2013) Seizure-related injuries and hospitalizations: Self-report data from the 2010 Australian Epilepsy Longitudinal Survey. Epilepsy and Behavior 26: 7-10
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