Resene is supporting Purple Day 2020

Tuesday, 24 March 2020

Resene is helping with Purple Day too. For all of March, buy any purple Resene testpot from your local Resene owned ColorShop in NZ and Resene will donate $1 per testpot to Epilepsy NZ. So now’s a great time to start choosing your favourite purples.

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PURPLE DAY 2020

Wednesday, 12 February 2020

We are excited to make Purple Day 2020 the biggest yet! Register your interest today to help make your Purple Day event great! Mark Thursday 26th March in your calendar today. Make sure your school community and work communities know about it as well.

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PHARMAC to widen access to the exceptional circumstances process

Thursday, 21 November 2019

Patients taking lamotrigine who have concerns about the change can talk to their doctor about remaining on the current brand as PHARMAC has widened the criteria for lamotrigine exceptional circumstances.

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PHARMAC Decision welcomed by Epilepsy New Zealand

Thursday, 21 November 2019

Epilepsy New Zealand President Dr Peter Bergin welcomes the news that Pharmac are now allowing people who have been stable on their previous brands of lamotrigine to continue taking their original brand.

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PHARMAC waives fees to visit doctor

Thursday, 21 November 2019

If you have visited your doctor recently to seek advice on the brand changes for lamotrigine, your GP can waive the co-payment you would normally pay.

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SAYR Ventilation Systems - Supporting ENZ

Wednesday, 2 October 2019

SAYR is a ventilation company that helps you create a healthy home. They offer heating, insulation, ventilation, and LED lighting. Get a discount and support Epilepsy New Zealand -- use promotional code EPNZ100.

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Tell us your experience of changing from Lamictal to Logem

Wednesday, 2 October 2019

From 01 Oct 2019, Pharmac only funds the generic brand of Lamotrigine, called Logem. They no longer fund the Lamictal and Arrow brands. Tell us how it's going for you.

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Annual General Meeting 2019

Wednesday, 10 July 2019

The 63rd Annual General Meeting of the Epilepsy Association of New Zealand Inc is to be held on the 23rd August 2019 at 5.30pm. Venue: The Education Centre, Easthope Seminar Room, Level 12 WSB, Wellington Hospital.

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Epilepsy New Zealand Survey

Wednesday, 29 May 2019

Epilepsy New Zealand Needs to Hear Your Voice!

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Help — we need a car!

Friday, 10 May 2019

Help — we need a car! Our fabulous Waikato educator travels thousands of miles every year to support people with epilepsy. She dashes from Hamilton to Raglan, sprints to the Coromandel, and races to Taumarunui.

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BECOME A PURPLE DAY HERO

Friday, 15 February 2019

Become a Purple Day Hero and Register today

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Stem cells could halt epilepsy

Tuesday, 5 February 2019

Claire Wilson writes in New Scientist 22/29 December 2018 research that, "could stop seizures at their source." ......

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Newsletter February 2019

Tuesday, 5 February 2019

Our February 2019 Newsletter.....

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SAYR Supporting ENZ

Tuesday, 18 December 2018

Use promotional code EPNZ100 to obtain a discount and support ENZ. SAYR is primarily a ventilation company but we consider ourselves a one stop shop for a healthy home by suppling the key products you require to have a healthy home. • Clean Heating • Insulation • Ventilation • LED lighting The directors and creators of SAYR are Mark Williams and Bruce Dick, 2 kiwi blokes wanting to make people’s homes healthier like they should be, they believe that this should not be a privilege but a necessity for all New Zealanders. Mark and Bruce strongly believe that all children deserve to be given the best start in life. The best investment you can make in anyone is their health and their future. Mark has a science background and has operated his own businesses in the past, Bruce has owned businesses in the past and has a building and customer service background. Together make the perfect team, both have young families, so they understand how important it is to have a healthy home.

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Epilepsy Awareness - The Sky's the limit!

Monday, 17 December 2018

Today we are announcing an out-of-this-world #purpledayeveryday epilepsy awareness event with a special guest "star" who travels among the "stars." .....

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ACCESS TO PUBLIC TRANSPORT in Waikato

Friday, 14 December 2018

Hamilton sets the example for the rest of the country ..............

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Newsletter December 2018

Tuesday, 11 December 2018

THC GLOBAL POISED TO ENTER NEW ZEALAND’S SURGING MEDICINAL CANNABIS MARKET

Monday, 3 December 2018

THC Global Group Limited (THC) is pleased to advise that is has secured exclusive rights to import a range of high quality medicinal cannabis products into New Zealand under its strategic partnership with Denmark-based Endoca. THC Global will commence the importation of Endoca’s unique CBD and CBD+CBDa products from Europe via its operating subsidiary in New Zealand, THC Pharma (NZ) Limited, which has established a supply chain via New Zealand’s DATAPHARM, an online platform for prescribing and dispensing the Endoca products.

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Waikato Regional Council Total Mobility Scheme Rollout

Tuesday, 27 November 2018

The Waikato Regional Council is excited to announce the development of our Total Mobility Scheme onto the Ridewise electronic system.

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Support from The Akarana Community Trust and the Pelorus Trust

Tuesday, 20 November 2018

Epilepsy New Zealand is grateful to the generous support of the Akarana Community Trust and the Pelorus Trust, allowing us to purchase 7 new laptops for out educators in Waitemata, Auckland Central, Counties-Manukau, Waikato, Lakes, Taranaki and Wellington

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Waikato Medicinal Cannabis Research Company - Cannasouth

Tuesday, 20 November 2018

In a first for New Zealand, medicinal cannabis research company Cannasouth has announced it will make an application to list its shares on the NZX Main Board through an initial public offering during the second calendar quarter of 2019

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Baytrust Dillon Scholarship

Monday, 1 October 2018

BayTrust Dillon Scholarship

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PHARMAC Submission on Proposal to fund sole supply of Lamotrigine

Wednesday, 26 September 2018

ENZ Submission to PHARMAC proposal to fund sole supply of Lamotrigine

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International Epilepsy Day 2019

Wednesday, 29 August 2018

As we prepare for International Epilepsy Day 2019, we are pleased to announce a video competition open to all. Attached you will find a document detailing this exciting competition. To help with promotion, we would appreciate if you could circulate the details to friends, colleagues and members.

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Fundraising - Team Kiwi Racing & ENZ

Thursday, 23 August 2018

Buy a Hot Laps Package for $199 and support ENZ. Alternatively, gift your ride to a person registered with ENZ, living with epilepsy.

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Medical Cannabidiol (MC) Research

Monday, 13 August 2018

Let me bring to your attention the attached research documents that have come out of Australia recently. They indicate MC has merit in control of drug resistant epilepsy in children.

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AGM Notice

Friday, 20 July 2018

The Board advises notification that the Epilepsy New Zealand AGM will be held in Auckland on the 28th September 2018 1pm

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Minds stimulated at Brain Health Research Centre events

Tuesday, 19 June 2018

From demons and exorcism to targeted therapy based on genetic coding – University of Otago Associate Professor Lynette Sadleir explored the fascinating story of how understandings of, and treatments for, epilepsy have progressed over time at a public lecture at the Dunedin Public Library on June 6. Follow link: https://www.otago.ac.nz/news/otago688189.html

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Taking valproate during pregnancy is a serious risk: An update on practice implications

Thursday, 26 April 2018

An article by Jonathan Sher talking about valproate during pregnancy and UK/Europe actions.

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Medsafe Consumer Level Recall – Apo-Primidone 250mg tablets

Wednesday, 18 April 2018

Apotex NZ Limited is recalling one batch of Apo-Primidone 250mg tablets because they contain lead. The amount of lead is above safe level if more than 2 tablets are taken each day. Primidone is an anti-epileptic medicine used to control seizures. Please continue taking your Apo-Primidone tablets. Stopping Primidone tablets suddenly can cause serious problems, including seizures which may not stop.

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Special Photos

Monday, 9 April 2018

Cassidy Megan received some special photos

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Epilepsy Survey - Consumer Experience

Monday, 9 April 2018

Ministry of Health and Epilepsy New Zealand seek your input into your experience so as to improve New Zealands Health service. This is an important survey we encourage everyone living with epilepsy to complete. To complete online www.epilepsy.org.nz/survey The survey close off is end of May 2018. To obtain a hardcopy version contact Tina on 07 834 3556 or national@epilepsy.org.nz

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We offer a real opportunity to make a difference

Wednesday, 28 March 2018

We have a Fixed Term position covering maternity leave in Christchurch.

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Tyler Barton to play at the New Zealand Long Drive Golf Open 2018

Wednesday, 21 March 2018

NZ Long Drive Golf Tournaments supports Epilepsy New Zealand

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Cycling for Epilepsy

Tuesday, 20 February 2018

Kiwi cyclist Tim Chittock is cycling the length of New Zealand to break a record and raise epilepsy awareness. Check out our website www.cyclingforepilepsy.com

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Purple Day 2018 is coming up!

Tuesday, 20 February 2018

Purple day is coming up on the 26 March 2018… we want you to get involved!

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PURPLE LIGHT UP

Tuesday, 20 February 2018

Epilepsy New Zealand wants YOU to get glowing and get involved with the 2018 Purple Light Up! Landmarks will be lit up around the country and we want you to join in on the fun!

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IBE Golden Light Awards - Bali 2018

Tuesday, 20 February 2018

Calling for nominations for IBE Golden Light Awards to be presented in Bali in 2018 at the time of the 12th Asian & Oceanian Epilepsy Congress.

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Introducing Ashleigh

Monday, 19 February 2018

Ashleigh is a great young woman from Canterbury, this story is written about her epilepsy by her mother, she is heading to Cleveland for epilepsy treatment.

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Jenifer Ann

Sunday, 28 January 2018

Jenifer Ann from Perth Australia shares her story and what she is doing about finding a cure for epilepsy .....

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MOVIE TICKETS WON BY NAPIER FAMILY

Wednesday, 10 January 2018

Four Reading Cinema family pass movie tickets were won by the Quate family from Napier for their commitment to donating to Epilepsy New Zealand and nominating our charitable organisation!

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Annual Report 2017

Monday, 4 December 2017

Annual Report 2017

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Top Tips for Christmas

Tuesday, 21 November 2017

Dr Peter Bergin shares some top tips to enjoy Christmas

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Applications are now open for the Medicines New Zealand 2017 Value of Medicines Award

Wednesday, 2 August 2017

The award recognises innovative research which improves the understanding, effectiveness or safety of the use of medicines in New Zealand. The national award is open to any researchers, professors, clinicians, students or academics that have completed research in this area in the last 24 months. The Award winner will receive a $20,000 grant for future projects.

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AGM 2017 Notification

Monday, 3 July 2017

Notice of AGM & Call for Nominations. Nominations and Remits must be returned by 11th August 2017

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Board Member Advert

Monday, 3 July 2017

ENZ is seeking nominations for Board Members. If your interested in serving as a volunteer on our Not For Profit Board and you have the particular skills and competencies sought why not seek election by contacting CEO@epilepsy.org.nz for more details.

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Lions legend Tom Smith spreads awareness about epilepsy while visiting Hamilton

Wednesday, 14 June 2017

Tom Smith, who was the cornerstone of the Scottish and British and Irish Lions forward pack between 1997 and 2005, is using his time while visiting New Zealand for the Lions tour to help raise the awareness of epilepsy. He wants to share his inspirational story that saw him have a successful international rugby career whilst living with epilepsy since the age of 18.

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Woolly Mammoth Found in Antarctica!

Friday, 31 March 2017

Epilepsy Association of New Zealand has just found the whereabouts of their Purple Mammoth who snuck away to spend Purple Day in Antarctica. Graeme Ambler, CEO of Epilepsy Association of New Zealand says, “It’s amazing that our Purple Mammoth took Purple Day celebrations to Antarctica. This means that Purple Day raising epilepsy awareness has been truly been celebrated globally this year”.

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Woolly Mammoth Found in Antarctica!

Friday, 31 March 2017

Epilepsy Association of New Zealand has just found the whereabouts of their Purple Mammoth who snuck away to spend Purple Day in Antarctica. Graeme Ambler, CEO of Epilepsy Association of New Zealand says, “It’s amazing that our Purple Mammoth took Purple Day celebrations to Antarctica. This means that Purple Day raising epilepsy awareness has been truly been celebrated globally this year”.

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Influenza immunisation

Thursday, 26 January 2017

Influenza immunisation is FREE for people who have epilepsy

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Otago News November 2016

Thursday, 26 January 2017

Otago Newsletter 2016

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Ronald McDonald House - Rotorua Retreat House

Wednesday, 25 January 2017

We understand that families with chronically ill children are often under immense emotional, physical and financial stress. To help relieve this burden...

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Fundraising New Zealand Magazine Article

Friday, 11 November 2016

The time has arrived to resolve the impasse between the epilepsy foundation and epilepsy new zealand to develop a more efficient and sustainable single organisation for the benefit of people living with epilepsy....

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My Mothers Sickness: Claire 1985

Friday, 11 November 2016

One of the hardest things in my life to deal with has been my mother’s epilepsy, and to tell you the truth, I still haven’t dealt with it, just avoided it.

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First Seizure

Friday, 11 November 2016

This is a story written by a 13 year old about his first seizures. It is descriptive and will tug at some heart strings I think....

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Claire's Story

Friday, 11 November 2016

My wife Claire passed away in February this year from a cardiac arrhythmia caused by an epileptic seizure. Claire’s seizures started three and a half years prior to this, in June 2011. We were driving to Dunedin to watch our son play an ice hockey tournament. Shortly after lunch, just past ....

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Call for Editor – Wikipedia Epilepsy

Friday, 11 November 2016

The International League Against Epilepsy (ILAE) invites applicants and nominations for the position of Editor-in-Chief of its new Wikipedia Epilepsy initiative.....

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Evie the epilepsy hero

Friday, 11 November 2016

A one-of-a-kind dog is helping to raise awareness about epilepsy - not just for humans but for her canine friends.....

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Seizure Type Classification

Friday, 11 November 2016

he ILAE Commission on Classification and Terminology strives to continually review definitions of seizure types, syndromes, and epilepsy aetiologies, aligned to the latest developments in this field. In 2010 the Commission introduced new concepts into the classification, or as it was termed then organisation, of seizure types and the epilepsies taking a more aetiological approach than previous classifications [1]. This document and a subsequent report, published online, invited comment from the epilepsy community [2]. Debate within the epilepsy community has been well informed and passionate.

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Talk About It

Tuesday, 1 November 2016

Talk About it is a global campaign to increase the awareness of epilepsy held in November every year.....

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OBITUARY: BRUCE HAYES

Thursday, 20 October 2016

On behalf of the Board of Epilepsy Association of New Zealand ......

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Class 4 Submission June 2016

Wednesday, 1 June 2016

Submission provided to Department of Internal Affairs in response to Class 4 Gambling review June 2016

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Newsletter 1.

Friday, 1 January 2016

WEAR PURPLE FOR EPILEPSY TODAY

Thursday, 26 March 2015

Wear something purple and raise epilepsy awareness.

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BNZ SUPPORTS PURPLE DAY FOR EPILEPSY NATIONWIDE

Wednesday, 25 March 2015

Bank of New Zealand (BNZ) has joined Epilepsy New Zealand once again.

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EPILEPSY NZ'S PURPLE DAY CHALLENGE!

Sunday, 1 March 2015

On March 26, Epilepsy New Zealand challenges you to be a Hero!

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NEW STUDY HIGHLIGHTS UNDERDIAGNOSIS OF DEPRESSION.

Thursday, 25 September 2014

NEW STUDY HIGHLIGHTS UNDERDIAGNOSIS OF DEPRESSION IN EPILEPSY PATIENTS

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View Items

Latest Updates

  • Covid 19 and Epilepsy Update 26 March 2020
    26 March 2020

    Epilepsy New Zealand has been receiving regular information from the Ministry of Health and other agencies, often more than once a day, showing just how quickly the situation is evolving. No doubt there will be many people, including those with epilepsy, who have questions around their risk and what to do in these uncertain times. Hopefully the information below may help reassure you and where necessary, prompt you to contact your trusted health professional.

  • BPAC issues new guidelines for Lamotrigine
    26 September 2019

    BPAC issues new guidelines for Lamotrigine.

  • Petition against Pharmac's drug changes
    29 August 2019

    A petition is underway calling on Pharmac to reverse its decision on Lamotrigine.

  • Epilepsy NZ Position Statement - Lamotrigine
    28 August 2019

    We opposed this change from Lamictal to Logem from the start, and staff have advocated on behalf of people with epilepsy in discussions with Pharmac.

  • Don't Give Up by Adele Hauwai
    4 December 2017

    Adele Hauwai has shared her Living With Epilepsy story as part of the Epilepsy NZ Tell Us About It Competition. People were asked to send in their stories about epilepsy, the challenges they faced and the lessons they have learned that they would like to share with the world.

  • New ILAE Seizure Classification
    10 March 2017

    The ILAE announces the publication in Epilepsia of two new landmark classification documents, one of seizure types and one of the epilepsies.

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