PHARMAC to widen access to the exceptional circumstances processThursday, 21 November 2019 Patients taking lamotrigine who have concerns about the change can talk to their doctor about remaining on the current brand as PHARMAC has widened the criteria for lamotrigine exceptional circumstances. |
PHARMAC Decision welcomed by Epilepsy New ZealandThursday, 21 November 2019 Epilepsy New Zealand President Dr Peter Bergin welcomes the news that Pharmac are now allowing people who have been stable on their previous brands of lamotrigine to continue taking their original brand. |
PHARMAC waives fees to visit doctorThursday, 21 November 2019 If you have visited your doctor recently to seek advice on the brand changes for lamotrigine, your GP can waive the co-payment you would normally pay. |
SAYR Ventilation Systems - Supporting ENZWednesday, 2 October 2019 SAYR is a ventilation company that helps you create a healthy home. They offer heating, insulation, ventilation, and LED lighting. Get a discount and support Epilepsy New Zealand -- use promotional code EPNZ100. |
Tell us your experience of changing from Lamictal to LogemWednesday, 2 October 2019 From 01 Oct 2019, Pharmac only funds the generic brand of Lamotrigine, called Logem. They no longer fund the Lamictal and Arrow brands. Tell us how it's going for you. |
BPAC issues new guidelines for LamotrigineThursday, 26 September 2019 BPAC issues new guidelines for Lamotrigine. |
Petition against Pharmac's drug changesThursday, 29 August 2019 A petition is underway calling on Pharmac to reverse its decision on Lamotrigine. |
Epilepsy NZ Position Statement - LamotrigineWednesday, 28 August 2019 We opposed this change from Lamictal to Logem from the start, and staff have advocated on behalf of people with epilepsy in discussions with Pharmac. |
Ministry of Health survey improves understanding of epilepsyTuesday, 26 March 2019 The Ministry of Health recognises the challenges that people living with epilepsy face and is working to understand the condition better. To help raise awareness of epilepsy and mark Epilepsy New Zealand’s ‘Purple Day’ campaign, the Ministry of Health is releasing the findings of its first Epilepsy Consumer Experience Survey today. |
Crip the Lit launches "little book with big ideas"Wednesday, 13 March 2019 Robyn Hunt advises us that one of the right writers featured within this book writes frankly about her epilepsy in a very positive and empowered way. |
Epilepsy New Zealand partners with innovative Dunedin CompanyThursday, 31 January 2019 Epilepsy New Zealand partners with innovative Dunedin Company Innovative Dunedin Company First Aid Pod, whose pop-up shelters offer privacy during medical emergencies, is linking with Epilepsy New Zealand. First Aid Pods have been selling fast in New Zealand and Australia since being launched in April 2017 by Dunedin based businessmen Tony Watts, Craig Latimer and Braedan Trompetter. |
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Newsletter December 2018Tuesday, 11 December 2018 |
Mikayla's JourneyThursday, 29 November 2018 The story is about our daughter Mikayla who suffers with nocturnal frontal lobe epilepsy. |
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SIR BILL ENGLISH APPOINTED AS PATRON OF EPILEPSY NEW ZEALANDThursday, 29 November 2018 Epilepsy New Zealand is proud to announce that Sir Bill English has graciously agreed to become patron of the national organisation. Chair of Epilepsy New Zealand, Dr Peter Bergin says: “We are grateful to welcome Sir Bill English as our patron. To have such a skilled person supporting our cause - which is to improve the quality of life of people and their families living with epilepsy - is invaluable.” |
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Taking medicines for epilepsy, mood, or pain ACC LinkMonday, 5 March 2018 Foetal Anticonvulsant Syndrome ACC has worked with experts from across the sector to let women, their families and their health providers know about the effects of taking antiepileptic medicine during pregnancy. This includes: The use - for epilepsy, mood disorders, and pain management The risk of harm - malformations and cognitive impairments What to do if they're pregnant or planning a pregnancy. |
Introducing AshleighMonday, 19 February 2018 Ashleigh is a great young woman from Canterbury, this story is written about her epilepsy by her mother, she is heading to Cleveland for epilepsy treatment. |
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Don't Give Up by Adele HauwaiMonday, 4 December 2017 Adele Hauwai has shared her Living With Epilepsy story as part of the Epilepsy NZ Tell Us About It Competition. People were asked to send in their stories about epilepsy, the challenges they faced and the lessons they have learned that they would like to share with the world. |
New ILAE Seizure ClassificationFriday, 10 March 2017 The ILAE announces the publication in Epilepsia of two new landmark classification documents, one of seizure types and one of the epilepsies. |
Media KitThursday, 2 February 2017 Media Information Kit |
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